Van Schoick Benefit Bash 2008
Welcome to the Van Schoick family fundraiser website. Our names are Robbi and Rebecca Van Schoick. We have the disease Friedreich's ataxia, a rare, genetic, neurodegenerative, multi-system, life-shortening disorder. Its symptoms incude muscle weakness, vision, hearing and speech problems, diabetes and heart conditions. About one in 50,000 people in the United States has Friedreich's ataxia.
We are very happy to report that our 2008 Benefit Bash was a huge success. As of May 12, we have cleared over $90,000 for research. Each and every dollar will go directly to finding out more about Friedreich's Ataxia and bring closer the day when no child will have to live with this disease.
Please visit www.rondaivyphotography.com to see more pictures from our event and to order reprints. All proceeds will benefit the Friedreich's Ataxia Research Alliance.
Mark your calendars for October 17, 2008 -- our first fundraising golf tournament in Texas! Visit lonestarbenefitbash.org for all the details. Our generous friends at Performance Awards Center and Med-Pharmex Animal Health are hosting this tournament at The Golf Club at Castle HIlls, in Lewisville, near Dallas.
Athens Banner-Herald: Girl inspired to help fund Friedreich's Ataxia research
All proceeds to benefit the Friedreich’s Ataxia Research Alliance (FARA)
FARA is a national, public 501(c)(3), non-profit, tax-exempt organization
dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich's ataxia.
FARA’s mission is to slow, stop, and reverse the damage caused by this disorder.
